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Septembre 2022

AJPP et chômage : notre mobilisation aboutit au Ministère des Solidarités

Depuis l'été, les CAF rabotaient les droits des familles de parents d'enfants malades en limitant le nombre de jours d'AJPP (allocation journalière de présence parentale) des demandeurs d’emploi au reliquat de jours de chômage. En d'autres termes, alors que ce droit s'établissait à 310 jours renouvelables pour les salariés, indépendants et demandeurs d'emploi devant cesser leur activité professionnelle (ou leur recherche d'emploi) pour s'occuper de leur enfant, cette dernière catégorie devenait fortement pénalisée : 10 jours de chômage = 10 jours d'AJPP au lieu de 310 jours.

Les associations Eva pour la vie, LEA et un collectif de parents, "Mobilisation AJPP" se sont mobilisés ensemble avec l'appui de la Fédération Grandir Sans Cancer.

Courant septembre, Eva pour la vie a obtenu un RV, avec l'appui du député Paul Christophe, au Ministère des solidarités qui nous a donné raison.


 



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Septembre 2022

Nouveau annuaire : maisons de parents

Les familles d'enfants d'enfants malades vivent parfois loin de l'hôpital des enfants. C'est notamment fréquent pour l'oncologie pédiatrique, les différents services n'existant que dans des grandes villes. S'il est souvent possible pour un seul parent de dormir près de son enfant, certains services ne le permettent pas. De plus, les 2 parents voire la fratrie veulent pouvoir être présents dans ces moments difficiles. Les maisons d'accueil hospitalières offrent une solution de logement économique. Notre annuaire vous permet de retrouver les adresses, coordonnées et tarifs par département ...

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Juin 2022

Advanced - La Banque Postale waives fees following the death of a child

Application fees to close the booklet A of a child who died of cancer: a situation denounced by Eva for life, widely reported by the media. La Banque Postale waives these fees for all deceased minors. Better: Bercy invites other banks to do the same. Otherwise, it will legislate...

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Mai 2022

Investigation: shocking bank charges following the death of a child

Several families have alerted us to a shocking practice: after the death of a child, some banks charge "file fees" to close their savings account, sometimes referring to inheritance costs. Faced with this situation, we have decided, on the one hand, to alert the media, and on the other hand, to carry out a major investigation...

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Avril 2022

Families of sick children: Paul Christophe's report

RV at the National Assembly with Stéphane Vedrenne (Eva for life), Stéphanie Ville (Aidons Marina), Wilfried Briand (expert in financial and insurance issues for EPLV), MP Paul Christophe and a representative of IGAS to present, at the request of the Prime Minister, a report containing 35 proposals to improve the daily life of families of seriously ill children, victims of an accident





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Mars 2022

Exchanges at the Ministry of Transformation & Public Service

Corinne Vedrenne, president of Eva pour la vie was invited this morning, with Jessica Baba (Asso LEA) and Stéphanie Ville (Aidons Marina) to the Ministry of Transformation and Public Service by Ministers Amélie de Montchalin and Adrien Taquet to an update on the protection of families affected by the death of a child. Other issues were also discussed...

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Février 2022

Colloquium Pediatric cancers National Assembly: a strong mobilization

The 5th "Growing Up Without Cancer & National Assembly" symposium dedicated to the fight against childhood cancers and serious illnesses, which took place on Wednesday February 16, 2022, once again mobilized dozens of deputies, associations, researchers, professionals (health, social workers, teachers) and families. Back to the highlights...


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Décembre 2021

Support for children with cancer and chronic diseases: the PPL of Béatrice Descamps voted

After a unanimous vote in the National Assembly, the Senate approved this bill which creates a specific 2-day leave when the announcement of cancer or chronic pathology in children. It will also make it possible to better secure the course of the pupils concerned by such situations. Finally, an article is directly related to our work - supported by Grandir Sans Cancer - aimed at creating the status of protected parent in the face of serious illness or an accident of life.

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Octobre 2021

20M € voted for research on pediatric cancers!

At the end of 2018, the Minister of Research Frédérique Vidal had granted the establishment of a fund of 5 million euros per year for research on childhood cancer. This fund showed both its effectiveness and its insufficiency: 15 to 20 million per year were lacking. Under the leadership of Eva pour la vie and with the support of Grandir Sans Cancer, several deputies have joined forces. The most ambitious, Béatrice Descamps, proposed an amendment of 20 million. It was voted after a start to the meeting, however not very encouraging ...

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Octobre 2021

AJPP: strong progress

The deputy Paul Christophe has just obtained through an amendment the revaluation of the AJPP and the caregiver leave at the level of the minimum wage, or 1250 €. This progress is added to the doubling of its duration, increased from 310 to 620 days.




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Septembre 2021

The hospital of our soft toys at IGR

With the support of the CNP Foundation and thanks to our donors, Eva pour la vie finances a space dedicated to small patients (2-11 years old) suffering from cancer, to better prepare them for radiotherapy treatment. It will be commissioned in early 2022.



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Septembre 2021

Sport at the Toulouse & Clermont Ferrand Children's Hospital

Sports therapy is necessary for the well-being of hospitalized children, when possible. Numerous scientific studies have proven that the practice of physical activity reduces the side effects of treatments, reduces the risk of recurrence and improves the quality of life of patients. This is why Eva pour la vie, together with other associations, supports sports therapy programs for children with cancer in the children's hospitals in Toulouse and Clermont-Ferrand.

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Septembre 2021

Brainstem tumors: new discoveries from INSERM Bordeaux

For 8 years, Eva pour la vie has supported Dr Grosset's team (INSERM Bordeaux), whose latest work demonstrates the effectiveness of a combination of available drugs to better fight against brainstem tumors and hepatoblastomas.

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Août 2021

TRIBUNE for the protection of families of seriously ill children

Eva pour la vie has launched, with the support of Grandir Sans Cancer, a forum "Faced with cancers, serious illnesses and accidents in the life of the child, let's fight against inequalities" to raise awareness of public opinion and authorities. public. More than 110 deputies and senators, as well as dozens of associations have co-signed it.


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Juillet 2021

A shop in Eva's colors for life!

Since December 2020, and despite the obstacles created by the pandemic, a store dedicated to Eva for Life has opened in Sables d'Olonne, on the initiative of an amazing team of volunteers. Six months later, the conclusion is clear: it is a HUGE success!

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Juin 2021

INCa pediatric cancer conference

From June 16 to 18, INCa organized an international scientific conference dedicated to pediatric cancers. Stéphane Vedrenne spoke during the round table dedicated to the causes and origins of pediatric cancers. To see again if you missed it!

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Mai 2021

Pediatric cancer conference National Assembly

At the National Assembly (via ZOOM), in the presence of dozens of elected officials, many associations and researchers around research, prevention, help for families of sick children, victims of a life ...


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Avril 2021

New partnerships: CNP Assurances and Framily

CNP Assurances has decided to make a financial contribution to facilitate the accommodation of families of sick children near the hospital and to support the setting up of sports therapy or art therapy sessions. To support hospitalized children, Framily decided to offer us the manufacture and sending of magnificent personalized books in which the child becomes the hero of his own story!

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Avril 2021

Decaux poster campaign in 307 French cities

In April, the JC Decaux bill-poster supports Eva for life by offering us numerous bus shelters. Despite the progress made since 2017, funding for pediatric cancer research and support for families of sick children must be greatly improved. We inform citizens and challenge the State of the situation, on the basis of work carried out with the Grandir Sans Cancer federation, researchers, elected officials, families ...

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Mars 2021

Beatrice Descamps PPL vote on childhood cancer & chronic diseases

The National Assembly unanimously voted on the bill proposed by UDI MP Beatrice Descamps relating to the support of children with chronic pathology and cancer, for which we had been heard and made proposals. This law allows for the introduction of parental leave of 2 days when a chronic pathology (diabetes, epilepsy, etc.) or cancer in children is announced. It also includes two other support measures to facilitate the inclusion of the children concerned in school ...


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