Appel à projets cancers pédiatriques

Tout faire pour que le nombre de décès d'enfants atteints de cancers recule, en France et dans le Monde, est notre priorité. A l'occasion de #septembreenor , Eva pour la vie présente un appel à projets supplémentaire d'un montant de 100 000 euros.

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Logement, emploi...: nouvelles protections pour les familles d'enfants malades

Une nouvelle victoire issu d'un travail commun ! La proposition de loi de Paul Christophe, conçue avec Eva pour la vie et Grandir Sans Cancer, visant à renforcer la protection des familles d’enfants atteints d’une maladie grave est définitivement adoptée, après avoir été enrichie par le Sénat. Elle apporte des avancées fortes pour les familles face à l'emploi, au logement et à l'AJPP. Elle allonge également le congé d'annonce et de deuil d'un enfant et met en place une expériementation avec les CAF pour simplifier fortement la vie des familles concernées.

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Tribune "crédit immobilier" diffusée par Le Monde

Le Monde diffuse notre tribune "Pour la prise en charge des mensualités du crédit immobilier par l’assurance emprunteur des familles d’enfants gravement malades" cosignée par 185 députés transpartisans, ainsi que 85 associations de parents.

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Emission cancers pédiatriques sur LCP

Cancers : les enfants oubliés ? C'est le thème de l'émission "Débats docs" diffusée ce mercredi 22 mars à 20h30 sur LCP. Après un documentaire poignant, Stéphane Vedrenne, co-fondateur d'Eva pour la vie et président de la fédération Grandir Sans Cancer, évoquait avec la députée Béatrice Descamps ainsi qu'une biologiste la situation de la recherche, le désengagement des industriels du médicament et les aspects sociaux : à la difficulté de la maladie s'ajoute trop souvent les problèmes sociaux pour les familles

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Familles d'enfants malades : vote de la PPL de Paul Christophe

Cette proposition de loi vise à mieux protéger les familles d'enfants gravement malades face à l'emploi, à accélérer l'accès à l'AJPP (allocation journalière de présence parentale) et à mettre en place une expérimentation avec les administrations pour mieux accompagner les familles, notamment en ce qui concerne le reste à charge. Elle a été travaillée avec Eva pour la vie et la Fédération Grandir Sans Cancer

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Colloque cancers pédiatriques à l'Assemblée Nationale

C'est un évènement sans précédent, impulsé par la fédération Grandir Sans Cancer & Eva pour la vie dès 2017. Ce temps d'échanges rassemblant familles, associations, professionnels, médecins, chercheurs et de nombreux parlementaires permet d'aborder les problématiques de la recherche et des aspects sociaux pour les familles d'enfants atteints de cancers, de maladies graves et de handicaps.

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Serious illness of a child: coverage of the property loan by CNP

This is a European first! At the instigation of Eva pour la vie, CNP Assurances includes a "family guarantee" in its mortgage loan insurance without additional premium, allowing families who have to stop working to take care of their child suffering from cancer, serious illness or an accident of life to benefit from a coverage of the monthly payments




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10000€ to Draw me high tech

Dessine-moi la High-Tech is an association driven by a double ambition: to lighten the daily lives of hospitalized children through High-Tech workshops while supporting pediatric oncology research. Eva pour la vie has decided to allocate a grant of €10,000 to support, across the whole of France, their workshops run by experienced volunteers. A moment of respite much appreciated by sick children. Interview with Pascal Budet...



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AJPP and unemployment: our mobilization leads to the Ministry of Solidarity

Since the summer, the CAF had been reducing the rights of the families of parents of sick children by limiting the number of days of AJPP (daily allowance of parental presence) for job seekers to the remainder of the days of unemployment. In other words, while this right was established at 310 renewable days for employees, self-employed persons and job seekers having to cease their professional activity (or their job search) to take care of their child, the latter category became heavily penalised: 10 days of unemployment = 10 days of AJPP instead of 310 days.

The associations Eva pour la vie, LEA and a collective of parents, " Mobilization AJPP " mobilized together with the support of the Federation Growing Up Without Cancer .

During September, Eva pour la vie obtained an RV, with the support of deputy Paul Christophe, at the Ministry of Solidarity, who agreed with us.

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New directory: parents' houses

Families of children of sick children sometimes live far from the children's hospital. This is particularly common for pediatric oncology, the various departments only existing in large cities. While it is often possible for a single parent to sleep near their child, some services do not allow this. In addition, the 2 parents or even the siblings want to be able to be present in these difficult times. Hospital reception houses offer an economical housing solution. Our directory allows you to find the addresses, contact details and prices by department...

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Advanced - La Banque Postale waives fees following the death of a child

Application fees to close the booklet A of a child who died of cancer: a situation denounced by Eva for life, widely reported by the media. La Banque Postale waives these fees for all deceased minors. Better: Bercy invites other banks to do the same. Otherwise, it will legislate...

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Investigation: shocking bank charges following the death of a child

Several families have alerted us to a shocking practice: after the death of a child, some banks charge "file fees" to close their savings account, sometimes referring to inheritance costs. Faced with this situation, we have decided, on the one hand, to alert the media, and on the other hand, to carry out a major investigation...

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Families of sick children: Paul Christophe's report

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Exchanges at the Ministry of Transformation & Public Service

Corinne Vedrenne, president of Eva pour la vie was invited this morning, with Jessica Baba (Asso LEA) and Stéphanie Ville (Aidons Marina) to the Ministry of Transformation and Public Service by Ministers Amélie de Montchalin and Adrien Taquet to an update on the protection of families affected by the death of a child. Other issues were also discussed...

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Colloquium Pediatric cancers National Assembly: a strong mobilization

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Support for children with cancer and chronic diseases: the PPL of Béatrice Descamps voted

After a unanimous vote in the National Assembly, the Senate approved this bill which creates a specific 2-day leave when the announcement of cancer or chronic pathology in children. It will also make it possible to better secure the course of the pupils concerned by such situations. Finally, an article is directly related to our work - supported by Grandir Sans Cancer - aimed at creating the status of protected parent in the face of serious illness or an accident of life.

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20M € voted for research on pediatric cancers!

At the end of 2018, the Minister of Research Frédérique Vidal had granted the establishment of a fund of 5 million euros per year for research on childhood cancer. This fund showed both its effectiveness and its insufficiency: 15 to 20 million per year were lacking. Under the leadership of Eva pour la vie and with the support of Grandir Sans Cancer, several deputies have joined forces. The most ambitious, Béatrice Descamps, proposed an amendment of 20 million. It was voted after a start to the meeting, however not very encouraging ...

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AJPP: strong progress

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The hospital of our soft toys at IGR

With the support of the CNP Foundation and thanks to our donors, Eva pour la vie finances a space dedicated to small patients (2-11 years old) suffering from cancer, to better prepare them for radiotherapy treatment. It will be commissioned in early 2022.

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Sport at the Toulouse & Clermont Ferrand Children's Hospital

Sports therapy is necessary for the well-being of hospitalized children, when possible. Numerous scientific studies have proven that the practice of physical activity reduces the side effects of treatments, reduces the risk of recurrence and improves the quality of life of patients. This is why Eva pour la vie, together with other associations, supports sports therapy programs for children with cancer in the children's hospitals in Toulouse and Clermont-Ferrand.

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