Vote au Sénat PPL de Vincent Thiébaut - familles d'enfants malades & handicapés

C'était attendu de longue date : après 14 mois d'attente, cettte proposition de loi qui apporte des progrès majeurs en termes d'accompagnement des enfants atteints de cancers, de maladies graves et de handicaps a été votée au Sénat. Un texte modifié par les sénateurs, qui apporte quelques avancées complémentaires utiles aux familles.

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Le fonds alloué à la recherche sur les cancers pédiatriques porté à 20M€/an

C'est une victoire pour la recherche sur les cancers de l'enfant, obtenue grâce à la mobilisation d'Eva pour la vie et de la fédération Grandir Sans Cancer : le ministre de la recherche Philippe Baptiste nous confirme qu'à partir de 2026, les 2 ministères (santé et recherche) flécheront 10M€ chacun par an, soit 20M€/an en tout à la recherche contre ces maladies, au lieu des 5M€/an alloués depuis fin 2018. Une avancée majeure, issue d'un long combat.

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Research, treatments and support: our hopes for 2026

Following our discussions, the Minister of Research, the members of parliament and the senators made commitments: to increase the fund dedicated to research on pediatric cancers to €20 million/year from 2026, to debate in the Senate (with a view to effective implementation) the bill proposed by Vincent Thiébaut aimed at better supporting families of sick children by the end of February, and finally to debate the bill proposed by Marie Récalde (after a missed appointment on December 11) which aims to promote the development of start-ups for drugs against cancers and rare diseases in children.

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Loi médicaments pédiatriques de Marie Récalde : votée en commission, débat avorté le 11 décembre

La proposition de loi de Marie Récalde, qui vise à créer un fonds d'investissement pour accélérer le développement des médicaments pédiatriques contre les cancers et les maladies rares de l'enfant, a été débattue en commission des affaires sociales le 3 décembre, avec un vote favorable de celle-ci. Elle devait être débattue le 11 décembre prochain à l'Assemblée nationale, au sein de l'hémicycle, dans le cadre de la niche socialiste, mais son mauvais classement décidé par le groupe (en 7ème position) a conduit à ce qu'elle ne puisse être examinée que pendant moins de 5 minutes (entre 23h55 et minuit) rendant le débat et son vote impossible. Un véritable choc pour les associations et les familles, qui demandent un réexamen début 2026.

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Pediatric medicines law: report on LCP and debates on December 11

LCP broadcast a report, from Bordeaux to Paris, on Marie Récalde's proposed law, which aims to create an investment fund to accelerate the development of pediatric drugs. This bill, passed by the Social Affairs Committee, is scheduled for debate in the National Assembly on December 11th. The report highlights the crucial role of Eva pour la vie (Eva for Life) in mobilizing public authorities to fight childhood cancers and serious illnesses.

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€20 million allocated in 2025 to research on childhood cancers: but what happens after that?

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September in gold: €150,000 for pediatric cancer research

This spring, the Eva for Life association and the Growing Up Without Cancer Federation launched a call for projects to fund research teams working on childhood cancers. This initiative was made possible thanks to public generosity, complementing existing efforts with the government. Numerous researchers responded with high-quality proposals. Several have already been selected, receiving up to €150,000 in funding. Here's an overview of the research topics...

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Pediatric medications: Marie Récalde's proposed law

Working with Eva for Life and the Growing Up Without Cancer federation, Marie Récalded has submitted a bill to establish a €70 million/year investment fund to support the development of pediatric drug startups focused on serious childhood illnesses, such as cancer. Researchers, doctors, associations, and families welcome this initiative. We hope that this bill—co-signed across party lines by numerous members of parliament and also supported by senators—will be debated as soon as possible.

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8th Symposium on Pediatric Cancers at the National Assembly: Prevention, Cure, Support

As part of a strong mobilization uniting numerous parliamentarians, professionals (doctors, researchers, social workers, etc.), associations, and families around the issue of combating childhood cancers, serious illnesses, and disabilities, Vincent Thiébaut (Member of Parliament for Bas-Rhin) organized a symposium on Wednesday, June 4th, at the National Assembly throughout the afternoon, in partnership with the Grandir sans cancer (Growing Up Without Cancer) Federation and Eva pour la vie (Eva for Life). This unique event, held within the Palais Bourbon (Colbert Room), addressed the needs of numerous associations, professionals, families, and parliamentarians, with roundtables designed to foster discussion.

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Vote for Vincent Thiébaut's PPL - families of sick and disabled children

The proposal by MP Vincent Thiébaut, co-constructed with Eva pour la vie & Grandir Sans Cancer, aimed at optimizing the protection and support of parents of children with cancer, serious illnesses and disabilities was voted unanimously in the National Assembly on December 3, 2024. While most of the initial measures were voted, it suffered the deletion of an article that concerned young owners, but benefited from additional advances through amendments. All in all, major advances for these families, which will be applicable as soon as the Senate has, in turn, voted on it...



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€25,000 thanks to Cartman in "The Game Master"!

Our godfather Cartman brilliantly represented Eva for life during his participation in the show "Le maitre du jeu", broadcast every Friday in October on TF1, in order to support the fight against childhood cancers. A look back at a great victory!

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Our platform brings together 130 deputies, associations and professionals

Published in the daily newspaper Libération, the column "Let's mobilize to the end to treat pediatric cancers!" written by Eva pour la vie & the Grandir Sans Cancer Federation raises awareness among public authorities of the need to increase the fund dedicated to research into childhood cancers from €5 to €25 million/year, in order to include clinical research. In addition, the co-signatories are calling for the creation of an investment fund to enable the development of pediatric drug startups, or a public drug establishment, prioritizing cancers and pathologies with poor prognosis in children.

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New bill for families of seriously ill children

MP Vincent Thiébaut worked with Eva pour la vie & Grandir Sans Cancer on a major bill aimed at optimizing the protection and support of parents of children with cancer, serious illnesses and disabilities, to make France exemplary in this area. It is massively supported by MPs: more than a hundred - some of whom are already very committed to the subject - have co-signed it. Objective: a debate in parliament for a vote by summer 2024.

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Pediatric cancer conference at the National Assembly

On Wednesday, February 28, 2024, a new conference, Growing up without cancer, was organized within the National Assembly, thanks to the intervention of MP Paul Christophe, in the presence of several dozen MPs, researchers, professionals and association representatives.

An unprecedented joint mobilization in France since 2017, with quality exchanges that have made it possible to obtain strong progress for children with cancer and disabilities, but which must be completed through 3 main objectives, set out by the associations, elected officials and professionals concerned...

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Home loan support for families of seriously ill children

The association Eva pour la vie is, with Grandir Sans Cancer and the deputy Paul Christophe, at the origin of an unprecedented decision by all French insurance companies and banks aimed at taking charge of the monthly mortgage payments of families of children suffering from cancer and serious illnesses.

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My Teddy Bear's Hospital in Strasbourg

Thanks to our donors, Eva pour la vie is providing a grant of €20,000 allowing Pharmavie to set up a space dedicated to young patients suffering from cancer, within the pediatric oncology and hematology department of the day hospital at the Haute Pierre Hospital in Strasbourg.

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Call for pediatric cancer projects

Doing everything to reduce the number of childhood cancer deaths in France and around the world is our priority. On the occasion of #septembreenor , Eva pour la vie is presenting an additional call for projects worth 100,000 euros.

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Housing, employment...: new protections for families of sick children

A new victory resulting from joint work! Paul Christophe's bill, designed with Eva pour la vie and Grandir Sans Cancer, aimed at strengthening the protection of families of children suffering from a serious illness has been definitively adopted, after being enriched by the Senate. It brings significant progress for families in terms of employment, housing and the AJPP. It also extends the leave for announcing and bereavement of a child and sets up an experiment with the CAF to greatly simplify the lives of the families concerned.

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"Real estate credit" column published by Le Monde

Le Monde is publishing our column "For the coverage of monthly mortgage payments by borrower insurance for families of seriously ill children" co-signed by 185 cross-party MPs, as well as 85 parents' associations.

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Pediatric cancer broadcast on LCP

Cancers: forgotten children? This is the theme of the program "Débats docs" broadcast this Wednesday, March 22 at 8:30 p.m. on LCP. After a poignant documentary, Stéphane Vedrenne, co-founder of Eva pour la vie and president of the Grandir Sans Cancer federation, discussed with MP Béatrice Descamps and a biologist the situation of research, the disengagement of drug manufacturers and the social aspects: in addition to the difficulty of the disease, social problems for families are too often added.

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